Me holding Addi skin-to-skin. She was so awake for the first half and couldn't decide which direction she wanted her head to face. She kept lifting it up and switching. She's got a strong little neck.
There really weren't any changes with the girls today. The ENT didn't end up coming yesterday or today so we still don't know anything about Jordyn's vocal chord. He said he will come tomorrow but I'm not holding my breath. Jordyn's doctor ordered an echo on her heart today because she hasn't had one for so long and she wondered if there would be anything there to explain why she can't stop swinging and why she isn't able to move off the NIPV. We will find out the results of that echo tomorrow.
This is how I left Jordyn this morning after holding her. She was all snuggled up with her hands up by her face. A couple hours after I left I got a text from her nurse, Lori, who asked if she could take a picture of her and send it to me...
She had grabbed the star and was holding it up by her face. So sweet!
These were the gifts from the Parent Support Group tonight. There's a onesie, a pair of socks, a burpcloth and some Easter eggs with candy inside. It's fun to see what the girls are going to get each week.
3 comments:
Oh my heck! Those pictures are so adorable! I'm gad you're feeling better. I hope you guys can get some of those questions answered soon. I can't even imagine how stressful this must all be.
I am sorry you were sick! Are you feeling better? I would love to bring you dinner next week sometime. Monday, Tuesday, Wednesday. Let me know what I can do to help. I love your girls beautiful hair!
Those photos are SO precious Holls!!! Still praying for all of you - sure love ya!!!
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