Sick Again

Addi is still doing well on the High Flow.  They turned her flow up from a 5 to a 6 and that seems to have made all the difference for her.  She doesn't seem tired anymore.  I was going to hold her today but as I was standing by her bed, changing her diaper, I got very light-headed.  I sat down and the nurse brought me some crackers and juice.  I ate them and really hoped I wasn't coming down with something.  I had skipped breakfast this morning and hoped that if I just got some food in me I would be able to hold her.  I didn't feel any better after the crackers so I decided to be safe and not hold her.  I'm so glad I didn't because when I got home I had the chills really bad and had a pretty high fever.  I spent most of the afternoon in bed, sleeping on and off.  I'm feeling a little better tonight and really hoping to be back to normal again tomorrow.

Brenda said Jordyn's been swinging like a monkey today.  She is just all over the place with her oxygen and it doesn't seem to be improving with the steroid she's been taking.  Tomorrow is the last day of it and we were all hoping to have seen more progress.  I did have a nurse tell me that some babies' don't respond to the steroid until after the 10 day course is through.  Maybe that's what she's waiting for.  Brenda called me tonight around 5:30 to talk to me about Jordyn.  She was a topic of conversation at the Neo Meeting today for all the doctors.  Most everyone is in agreement that the next step for her is to have an ear, nose, and throat specialist come in and look at her vocal chords.  When she had her PDA Ligation when she was 1 week old, one of the risks was that one of her vocal chords could get bumped or cut which would effect the way her voice sounds.  Brenda is concerned that this could have happened to Jordyn and she could have a little reflux and be aspirating the milk into her lungs.  The exam is really easy on the babies', he will cut a hole in the tip of her pacifier and then while she is sucking on it, he will thread a tiny camera down through the hole and into her throat to look at her vocal chords.  She said he usually works on Tuesdays so we will hopefully have more information tomorrow.