Jordyn is still doing great on the CPAP machine. They've described several different machines that the girls will move through as they get more and more independent on their breathing.
Apparently there is some discussion amongst the doctor's about Jordyn's head ultrasound. We're starting to get conflicting results / ideas on the bleeding. We were always told that it was a Grade 4 and bleeding was inside the ventricle and starting to seep onto the tissue. Dr. Minton has a theory that it could be an extreme Grade 1 hemorrhage. He described the possibility of the clot being next to the ventricle, not inside, but it's so big that it's actually pushing on the ventricle. The doctors are seeing the same ultrasound, but can't tell if the clot is inside the ventricle or just really big and overlapping the ventricle. This was news to us, as it always sounded like it was for sure a Grade 4. Dr. Minton has this theory and sounds like he is alone on the idea so we'll just have to wait and see what plays out. He was saying that it might take up to 6 months before we'll know for sure because that's when they can actually do an MRI. In the meantime, they will keep measuring her head and ensure it's growing at the rate that they expect and not getting too big too fast.
Linda holding Addison for the first time.
2 comments:
I'm sure it's so frustrating to not really know what's going on with Jordyn. Hopefully you'll get more concrete answers soon. You're always in my prayers. Love ya!
In our prayers!! Your babies are so beautiful! Sending love your way!
God Bless
Steve, Suzanne and girls (Adams)
Post a Comment