I have been working with Dr. Hoffman's office to try and wean Jordyn off her oxygen. I take the oxygen off for a little while during the day and do spot checks then the next day I do a little longer. She's always done really well when she's awake but when I have tried to check her during naps or at night she dips low. Today I got the go ahead from Dr. Hoffman that she can be off oxygen during the day while she is awake and just wear it for naps and bedtime. We are so excited! This is the first step to getting her off it permanently and this will make going places so much easier! We don't have to haul the tank around with us anymore!
I've been weaning Jordyn, with the help of Dr. Hoffman's nurse, Heidi. She is off for a couple hours everyday and I am supposed to do a few spot checks during that time with the SAT monitor. So far, she's stayed in the 90's right where she's supposed to be. I think she's enjoying having a break from the tubes too!
I fed the girls some rice cereal and squash for the first time today. Jordyn was not so interested and after the first bite she just locked her lips together and wouldn't let me in. Addi did better about opening her mouth and eating the food which is no surprise since she would eat all day if I let her.
They both made a lot of funny faces the whole time.
Eventually, Jordyn got upset and had definitely had enough.
We woke up this morning to a cold house. The furnace had stopped working in the night and wouldn't come back on. We called a repairman but they couldn't come until the evening so we got all bundled up and went about our day. The repairman said the furnace was installed in '85 and would cost a lot of money to repair and there was no guarantee how much longer it would last. So, needless to say, we'll be getting a new one! Hopefully they can come install it soon so we won't have to be cold for too long.