Roller Coaster

Jordyn got her UAC line out today.  The UAC line was attached to her belly button and had two purposes.  First, it gave a constant blood pressure reading and displayed on one of her big monitors.  Second, it was used by the nurses to draw blood from it. Now she'll have to be pricked every time when drawing blood. They use a blood pressure cuff when needing to check their blood pressure.  It's very similar to what the doctors use on us, except it's just tiny.

Addison's test results from Tuesday's blood culture showed negative.  They want to see 3 or 4 negative tests in a row before they deem the infection gone and out of her system.  She has been on antibiotics since Monday.  We're crossing our fingers that her PDA duct will close all the way while we wait for the infection to be clear so that she won't have to go through surgery.  If she does need the surgery, it would now likely be sometime next week.  Because of the infection, they did a test today by taking some spinal fluid to make sure the infection didn't make it's way into her brain.  We have to wait 5 days for the results of that test.  She was doing good tonight but they're trying to just give her as much rest as possible as she's been poked and prodded a lot these last few days.  They also took out her UAC line today. 

Holly's had a tough 24 hours emotionally. She's having a hard time seeing these babies so tiny and having all these tubes and IV's all over.  She doesn't want them to be in any pain.  This whole experience is so different than our last 3 births and it's a hard adjustment.  It can't help either that she doesn't have them here at home.  Everyone has been telling us that being in the NICU is a roller coaster ride and we've definitely been feeling that these past few days.

We really can't say thank you enough to so many of you who are going the extra mile in helping us out in so many aspects.  We realize that it's extremely tough on a lot of you too and your sacrifices and effort are greatly appreciated.  There have been plenty of offers of help that we haven't gotten around to yet.  Those offers aren't going unnoticed.  We truly are blessed to be surrounded by so many great friends and family.  We're very grateful for all of you.