11-29-13

I have been working with Dr. Hoffman's office to try and wean Jordyn off her oxygen.  I take the oxygen off for a little while during the day and do spot checks then the next day I do a little longer.  She's always done really well when she's awake but when I have tried to check her during naps or at night she dips low.  Today I got the go ahead from Dr. Hoffman that she can be off oxygen during the day while she is awake and just wear it for naps and bedtime.  We are so excited!  This is the first step to getting her off it permanently and this will make going places so much easier!  We don't have to haul the tank around with us anymore!